There has been so much that’s happened within the past week or so that I don’t even know where to begin. How can I begin to explain it all? So much love. So much kindness. So many miracles. How can we even begin to thank everyone? As I wrote in Dr. Savage’s card, there are no words to describe all the gratitude. No words can do this experience justice. Yet, on my walk today, the message that kept coming back to me was ‘be open‘.
How did all of these miracles transpire? Because we are open.
How do so many people care? Because we are open.
How did Brody make it through that surgery twice with no deficits? Because we are open.
When you allow your heart to split open , which I can promise you it does when you are a parent of a child facing something life-threatening, it can turn cynical and shut good out. Or, it can become so raw that you allow all the good to seep in because you know you need it for healing. The prayers, be open. The hugs, be open. The truth, be open. The fear, be open. The victories, be open.
When we first learned that his stubborn tumor had decided to start growing again after a couple years of stability, I just couldn’t believe it. How could a child who is exhibiting no symptoms and has this amazing life need another risky surgery? If he had to have another surgery, how could we ever become so lucky twice? Knowing more and more brain tumor families, we are now brutally aware of challenges that can come with a growing brain tumor: chemo, radiation, hydrocephalus, shunts, learning disabilities, physical disabilities, depression, and the list goes on and on. Would God spare us twice? I decided then to be open. There is no limit to good in the world or miracles that occur so I opened to the belief that he would be ok yet again.
Was I scared? YES. Was Brody? Not until 5 minutes before surgery began and I will never forget that moment of utter fear, heart split open again as Bo, Brody, and I cried together before they wheeled him away. I begged God for him just to be ok. Please let him wake up. Please let him be able to breathe on his own. Please let him to able to swallow. Please let him talk. Please let him run again. These are real risks and really scary feelings.
I’m not ashamed to say that we are not very religious people. I cannot quote scripture and I don’t read the bible daily. I don’t feel bad that we don’t attend church every week. And, I wasn’t even baptised until I was an adult. But, those are traditions that don’t always reflect a person’s true soul. What I am is a deeply spiritual person who believes in the power of God, prayers, love, and light. I believe in action over word. I believe in good over evil. I believe in having faith when it doesn’t make sense to. I believe that when we quiet ourselves, God speaks to us. I believe in miracles and can give testimonials all day long about what I have witnessed with Brody.
- Massive amounts of people, even people we don’t know, reaching out to pray for us and offer encouragement, favors, and hugs
- Brody not being scared and living a normal life weeks up until the surgery
- Dr. Savage being in Knoxville and operating on our child not once but twice (*she’s a true angel)…while having a one and half year old and being 8 months pregnant!
- Dr. Savage being able to resect all the tumor this time
- The first night in the PICU, his nurse being “Anna H.”
- Brody waking up, talking, and being able to stand all within the first 12 hours
- Brody getting out of PICU in less than 24 hours
- Brody having the will and determination to get up and get moving so quickly
- Brody coming home 4 days after this surgery when he predicted he would be in the hospital 4 days
- Brody not taking any meds just a week after brain surgery
I know there are many, many more examples of the power of prayer and love but you get the point! When you are open, good things can happen. Not only does this apply to brain surgery but to life. Be open to change. Be open to new people. Be open to new experiences. Be open to being a better person. Be open to giving. Be open to forgiving. Be open to loving.
To all our friends and family who were open alongside with us, thank you. Brody’s recovery is a testimony to all the good in the world. Good surgeons, good friends, good family, good food!, and good prayers. Your hearts were open along with ours and it’s healed us. Don’t wait for brain surgery to be open to love and miracles! Thank you, Jesus! Thank you, friends. Thank you, family. Thank you.
The above was taken TODAY when Brody met his friends for lunch on the last day of school. He came home and has been playing Fortnite (surprise, surprise) with some of them all afternoon too! Just incredible, as Nana would say.
The morning of the surgery, I played this cheesy song at 5:30 am (Bo loves me, wink-wink!!). I had been hearing the words for weeks and I kept thinking, “whatever it takes, ’cause I love the adrenaline in my veins. Whatever it takes, ’cause I love how it feels when I break the chains”….. That same day, Anna says Mrs. Sitzlar played the same song in her PE class!
#brodystrong #beopentomiracles #friends #faithoverfear #whateverittakes